Posts in Rare Disease
Episode 26 - Ehlers-Danlos Syndrome and a "Ray-a" Light in the Darkness with Raya Horcher
Episode 26 - Ehlers-Danlos Syndrome and a "Ray-a" Light in the Darkness with Raya Horcher

Today on the show I sit down with Rachel who goes by Raya Horcher. She is a mother of two, a certified holistic resilience coach, and advocate for the rare Elhers-Danlos Syndrome, and her mission is to walk with, educate and provide resources as people journey into and through their vulnerabilities and find their own light and joy to live a life that feels good. You can learn all about her and more at www.rayalife.life

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Parents, Self Advocate, Rare DiseaseAndy LaraParenting, Ehlers-Danlos, Rare DiseaseComment
Episode 23 - Advocacy Using Your Body, Noonan Syndrome, and Virtual Community with Elisabeth Parker
Episode 23 - Advocacy Using Your Body, Noonan Syndrome, and Virtual Community with Elisabeth Parker

Today on the podcast we are joined by mother and advocate, Elisabeth Parker. Elisabeth lives with her family in Portland as a Noonan Syndrome Advocate, she is a yoga instructor, and also the founder of @Move2Advocate that provides Rare Disease Mamas, Advocates and Friends with inspiration, accountability, and empowerment for self-care through all things movement.

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Parents, Rare DiseaseAndy LaraParenting, Business, Noonan Syndrome, Move2Advocate, Yoga, ExerciseComment