Episode 29 - Guest Host Amanda Garzon of the Hydrocephalus Association and friends!

Guest host Amanda Garzon, Chief Operations Officer of the Hydrocephalus Association, is joined by Eileen Rodger and Melenie Dailey, mothers of young-adult children living with hydrocephalus. Bringing twenty years of their shared experiences navigating the medical system with their medically complex children, Amanda, Eileen and Melenie share stories and lessons learned on advocating effectively with doctors and in the hospital setting.

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Episode 28 - Down Syndrome and Organ Donation Law with Jayci Dalrymple

Today on the show we have Allison Hertog, an attorney and former special ed teacher, is passionate about advocating for students with disabilities because she was once one, herself. before becoming a lawyer, she earned a masters degree in special education and taught children with varying special needs. Allison’s experiences as a special needs student and as a teacher make her a highly unique lawyer in the field or special education. She’s won or settled every case she’s filed.

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Episode 27 - IEP Lawyer and Self Advocate Allison Hertog, ESQ

Today on the show we have Allison Hertog, an attorney and former special ed teacher, is passionate about advocating for students with disabilities because she was once one, herself. before becoming a lawyer, she earned a masters degree in special education and taught children with varying special needs. Allison’s experiences as a special needs student and as a teacher make her a highly unique lawyer in the field or special education. She’s won or settled every case she’s filed.

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Episode 26 - Ehlers-Danlos Syndrome and a "Ray-a" Light in the Darkness with Raya Horcher

Today on the show I sit down with Rachel who goes by Raya Horcher. She is a mother of two, a certified holistic resilience coach, and advocate for the rare Elhers-Danlos Syndrome, and her mission is to walk with, educate and provide resources as people journey into and through their vulnerabilities and find their own light and joy to live a life that feels good. You can learn all about her and more at www.rayalife.life

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Episode 25 - Child Abuse Prevention with Lindsey Strickland of Worth the Conversation

Lindsey Strickland of Worth the Conversation joins us this month in observation of Child Abuse Awareness month. Lindsey spends her time with us sharing abuse prevention tools and strategies, the type of circumstances we should avoid and be aware of, and the types of questions we should be asking caretakers or organizations when placing our kids in their care.

Lindsey is an adopted mother to her child Ben who has Down Syndrome and raises her family in Washington.

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Episode 23 - Advocacy Using Your Body, Noonan Syndrome, and Virtual Community with Elisabeth Parker

Today on the podcast we are joined by mother and advocate, Elisabeth Parker. Elisabeth lives with her family in Portland as a Noonan Syndrome Advocate, she is a yoga instructor, and also the founder of @Move2Advocate that provides Rare Disease Mamas, Advocates and Friends with inspiration, accountability, and empowerment for self-care through all things movement.

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Episode 22 - Managing Expectations and Business as Advocacy with Ben, Laura, and Jonas Harrison of Jonas Paul Eyewear

Ben and Laura are the founders of Jonas Paul Eyewear and join us for a conversation about raising their son Jonas who was born blind, a result of a rare eye condition called Peters anomaly. We discuss life before and after diagnosis, how community changes with family changes, and they offer some advice if you’re thinking about starting an organization or a company in response to your child’s diagnosis. In addition, Jonas himself takes a moment to join us on the show and you don’t want to miss what he has to share with us!

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Episode 21 - Sharing Vulnerability with Guest Hosts Sinead Quinn and Melanie Dimmett

Host of the Finding Happy Podcast, Sinead Quinn and Author of Special, Melanie Dimmett, take over the show today for our Guest Hosted episode this month! They discuss the dynamics of grief, how vulnerability plays a part in the early stages of parenting, and how they continue to find motivation in their ongoing advocacy efforts.

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CALL TO ACTION NEEDED with Julie Payne Neward and Marisol Rubio

Today we offer you a special bonus episode that requires your attention. We speak with Julie Payne Neward and Marisol Rubio who have proposed to very important legal resolution for legislative consideration including 1) For increasing Caregiver support and 2) Exposing disability sexual assault history within state and federal funded organizations by means of releases 10 years of secret settlement lawsuit details.

SIGN CAREGIVER RESOLUTION HERE

SIGN SECRET SETTLEMENT TRANSPARENCY RESOLUTION HERE

LEARN MORE or to sign as an elected official or political leader at www.marisolandjulieadvocate.com

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Episode 20 - Cerebral Palsy, Shopping Carts, and Pageantry with Nicole La Ha Zwiercan

We’re celebrating Cerebral Palsy Awareness Day this week on March 25th, and we’re so excited to share that occasion this week with Nicole La Ha Zwiercan. Nicole is Mrs. USA Universe 2018, a parent advocate to her daughter with Cerebral Palsy, blogger at Its Simple to Be Kind and more.

In this episode, Ileana De Sosa and Nicole share a conversation about life and mind transition once becoming a parent to a child with Cerebral Palsy, how they celebrate when grocery stores and parks provide proper equipment, and they discuss how every space needs efforts for inclusion and advocacy.

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Miniland Educational - Dolls and Products made for a more open, inclusive, and diverse world.

Welcome to our first branded content episode, paid for and presented by Miniland Educational.

These episodes are curated and designed by the brand to bring you a conversational experience to hear about their company and products. We invite you to check out what our sponsors are all about, as they keep our show on the airwaves!

Check out Miniland Dolls and their other products at https://minilandgroup.com/educational/usa/diversity-integration-emotions/dolls-accesories.

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Episode 19 - First Woman with Down Syndrome to Run the Austin Half Marathon, Kayleigh Williamson and her mom Sandy

As we approach World Down Syndrome Day at the end of this week (3/21/21), we are joined by the first woman with Down Syndrome to complete the Austin Half Marathon, Kayleigh WIlliamson and her mother Sandy. Since then, Kayleigh has completed many half marathons and will attempt her first full marathon this year. She is also the author of the children’s book, It’s cool to be me.

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Episode 17 - Self Advocate Megan DeJarnett

Today we are joined by our friend, Megan DeJarnett. Megan is the founder of No Such Thing, a company with a mission to help others redefine purpose by removing defining labels. As an author, she is currently producing a series of children’s books including No Such Thing as Normal.

Megan was diagnosed at the age of 2 with Spinal Muscular Atrophy (SMA). With a tremendous faith in God and the love and support of her family, Megan lives life determined to experience life to the fullest and choose joy over despair.

In addition to being an author, Megan is a speaker, a wife, a mother and was crowned Ms. Wheelchair Tennessee.

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Episode 16 - Living and Learning While Raising a Person with Down Syndrome with Liz Plachta and Kelle Hampton

On today’s show Liz Plachta, founder of Ruby’s Rainbow, interviews Kelle Hampton, author of New York Time bestseller Bloom: Finding Beauty In the Unexpected and fellow Vice President of Ruby’s Rainbow. They share the touching stories of their experiences on the road together, the transition from surviving as a parent to a child with a disability to advocating in their everyday lives, and they discuss profound simple realities of the small steps they took toward making a difference in their lives, that then effected others in positive and beautiful ways.

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Episode 15 - The Need for Grief and Self Care with Tameka Diaz

Our friend Tameka Diaz spends some time with us on the show sharing about her experiences with grief and how important it is to develop a self regiment. She goes into detail about a never before shared experience in her own life that stopped her in her tracks before things could have gone terribly wrong. Tameka’s conversation is filled with grace and space for those who've hit rock bottom and need that empathy to cry, scream, and shout out the hurt. And, there’s hope on the other side.

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Episode 14 - Naturalistic and Relational SLP Therapy with Sarah Dhooge

Today on the show, Sarah Dhooge shares with us about her experience as an SLP and her unique approach to her clients, industry in B.C., and how it effects her day to day life with her 3 boys. Sarah is a pediatric Speech-Language Pathologist who specializes in naturalistic developmental interventions to help support the communication development of children with speech and language delays. Currently living in the Okanagan Valley with her Craft Beer enthusiast husband, Sarah is a mother to three boys and a retired-therapy dog named Bear.

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Episode 13 - Beyond Kindness and Inclusive Storytelling with Amy Webb

Amy Webb joins the podcast today and spends some time sharing her journey toward speaking up for inclusion for her daughter "Lamp" (Not her real name) who was born with a condition called microgastria and limb reduction complex. In addition, we revisit some blog content she previously wrote as a way to look at what's changed in her life and how we can observe that as a mirror to see our own prejudice and we talk about the practice of anti-ableism by looking at the work accomplished in advocating against racism.

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